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the story of Haley

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the story of Haley
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  • From a very early age, Holly felt different from the other "normal" children at school.
  • Holly would often try and finish her class work early, to go and help in the Support Classes. Holly never really fit in with the children in her own class.
  • Holly would spend her lunch and recess times with the children from the Support Classes, in their segregated play areas, as she felt a connected.
  • Holly was very sick for many years and spent a lot of time at the doctors in the search for a diagnosis.The symptoms just didn't add up.
  • At 25, Holly was finally diagnosed with ESD (Ehlers-Danlos Syndrome) and although it was a releif to have a diagnosis,Holly was not comfortable with being labelled disabled.
  • Holly didn't want to accept the label of being disabled or having a disability. She would not use mobility aids and just saw herself as chronically ill.
  • Autism month
  • At 27 Holly had another devastating blow, she was then diagnosed with Autism.This was hard news to take, but parts of her life started to make sense........
  • Holly now understood why she never felt connected to people at school and why she always felt a little different to everyone else. Holly went through a stage of grieving for the able bodied person she was, but this was the start of her emotional metamorphosis.
  • After Holly went through the grieving process, she found herself and she found love! She now has a husband and two children, all with Autism.
  • Holly now sees her disabilities, not as accessories, not a part of her, but simply her. They affect how she walks, talks, eats, communicates, socialises and experiences the world.Now she has taken ownership of being Disabled and celebrates it.
  • Now when Holly is out in public and she is using her walking stick, her wheel chair or even her noise cancelling headphones, she is a proud woman and a disability advocate.
  • Holly's culture is the Disability Culture and she couldn't be happier.

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