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Gina - Frederick, Morgan

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  • I heard this really inspiring story in class about a young girl named Gina, it was told by her mother. It really inspired me to be the best teacher I can be for gen. ed. and special ed kids!
  • Wow! Tell me more!
  • She was born with Smith-Lemli-Opitz syndrome (SLOS), a genetic disorder where the body's ability to make cholesterol is inhibited due to an enzyme.Her mother's story moved me to tears. It's a prime example of a mother's love for her child. I hope, as a future teacher, that my students feel support and love just like the love from those who helped Gina.
  • That sounds scary! How did it affect her schooling and home life?
  • Her parents, especially her mother, did everything they could to support Gina in her struggles and took every challenge head-on. Gina received PT, OT, ST, a feeding tube, and alternative treatments. Her parents never gave up on her despite many doctors doubting her future success or suggesting an institution.
  • How can we advocate for individuals like Gina?! Especially in a school setting?
  • If you have a student with special needs in your class, which you likely will, you should also understand the terms of IDEA related to the student's condition and how to best advocate for their needs in a classroom setting!
  • In a gen. ed setting, I plan on teaching my students about different disabilities they may come across in their school career (high and low incidence) and make them aware that "differences are not better or worse, they are just different" (Dr. Lila Swell).
  • I get it! Like support or information groups, resources where they can get more information on their child's condition if they need it or support from other parents who have children with the same condition. Mental health is important, too!
  • I totally agree! I would also love to have consistent communication with the parents as to what outside supports they may need. The school must service the child, but some parents might need support for themselves so they can best care for their child.
  • I hope this all works for ya! You seems to want to be the best teacher you can be for your kiddos, gen. ed. and special ed, and their parents!
  • I think it's also important to bring awareness to struggles that families face with a child with a disability. I think educating teachers and refreshing memories on specific disabilities, how to communicate with parents regarding the student's progress and 504 or IEPs, and how to help the student succeed based on their 504 or IEP, are a must!
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